Marcotravels6
Member
- First Name
- Tao
- Joined
- Oct 2, 2024
- Threads
- 3
- Messages
- 14
- Reaction score
- 39
- Location
- North CA
- Vehicles
- Cybertruck AWD Foundation Series
- Thread starter
- #1
Hi all, this will be a slightly unconvetional topic than most in this forum, but it is going to be carried out in my Cybertruck, so hopefully it is still appropriate. Please let me know if it is not, and if you want, please feel free to share the story to your friends and community, share with me travel tips, places to visit, and anything you want to leave a comment for my son and kids like him.
This is a post I shared on the past Father's day on my facebook page. The original post is here, but I am resposting it below:
It is about my amazing son, Max.
Back in 2019, our world was turned upside down when Max was diagnosed with Duchenne muscular dystrophy, also known as DMD. It’s a rare and relentless genetic disorder that causes progressive muscle loss in boys. It’s a reality we face every single day, but it’s nothing compared to the strength and light Max brings into our lives.
He is always happy and uplifting waking up to the light of a new day, braves unexpected pain in his legs while he plays with his buddies, and never complains about his countless visits to doctors, exams, and blood-draws for tests.
In addition to having a warrior at home, we've also found so much hope through incredible non-profit organizations that reach out to many families like ours with love, compassion and comfort. CureDuchenne is one such organization. They're on the front lines, funding groundbreaking research and providing crucial resources to families like ours, giving us powerful reasons to believe in a brighter future for boys like Max.
That's why we're doing something bold in return to this wonderful community! To honor Max’s strength and to support the organization that has given us so much, we're embarking on a 4,500-mile road trip across large parts of western U.S.
Driving Miles, Driving Change!
We will do this in our all electric Cybertruck—for us, it’s a symbol of the innovation, future, and strength we are fighting for!
We will visit many national parks, landmarks along the way, but also meet other boys and families living with Duchenne when possible. This journey is about creating unforgettable memories together and fighting back DMD by raising funds for CureDuchenne to support more families like us.
Watching Max face his daily challenges with a smile has taught me more about courage than I ever thought possible. This road trip is a celebration of his spirit and a promise to him that we will never stop fighting for a future free from Duchenne. Max will document and share about his trip in his youtube channel (www.youtube.com/@OdysseyofMaximus) along the way, and we will keep updating our trip in my facebook, instagram and other social media that can help to spread the story and raise awareness to this wonderful and brave community of people living with Duchenne.
We would be so grateful for your support. Every single dollar brings us closer to a cure.
You can join our journey and donate here: https://igfn.us/vf/25MAX
Thank you for being part of our community and our fight. Your support means the world.
#CureDuchenne #MaxMilesForMuscles #DuchenneAwareness #RoadTripForACure #Cybertruck
This is a post I shared on the past Father's day on my facebook page. The original post is here, but I am resposting it below:
It is about my amazing son, Max.
Back in 2019, our world was turned upside down when Max was diagnosed with Duchenne muscular dystrophy, also known as DMD. It’s a rare and relentless genetic disorder that causes progressive muscle loss in boys. It’s a reality we face every single day, but it’s nothing compared to the strength and light Max brings into our lives.
In addition to having a warrior at home, we've also found so much hope through incredible non-profit organizations that reach out to many families like ours with love, compassion and comfort. CureDuchenne is one such organization. They're on the front lines, funding groundbreaking research and providing crucial resources to families like ours, giving us powerful reasons to believe in a brighter future for boys like Max.
That's why we're doing something bold in return to this wonderful community! To honor Max’s strength and to support the organization that has given us so much, we're embarking on a 4,500-mile road trip across large parts of western U.S.
We will do this in our all electric Cybertruck—for us, it’s a symbol of the innovation, future, and strength we are fighting for!
Watching Max face his daily challenges with a smile has taught me more about courage than I ever thought possible. This road trip is a celebration of his spirit and a promise to him that we will never stop fighting for a future free from Duchenne. Max will document and share about his trip in his youtube channel (www.youtube.com/@OdysseyofMaximus) along the way, and we will keep updating our trip in my facebook, instagram and other social media that can help to spread the story and raise awareness to this wonderful and brave community of people living with Duchenne.
We would be so grateful for your support. Every single dollar brings us closer to a cure.
You can join our journey and donate here: https://igfn.us/vf/25MAX
Thank you for being part of our community and our fight. Your support means the world.
#CureDuchenne #MaxMilesForMuscles #DuchenneAwareness #RoadTripForACure #Cybertruck
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